Category: Blog
The day our lives changed
February 12th of 2016 is a day I remember very vividly. This was the day that Wyatt was diagnosed with Cystic Fibrosis. First, let’s jump back to the day before. On February 11th we were getting dinner ready when I got a call from the pediatrician. Of course my ringer was off and we received […]
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Clinic Visit
Hi everyone! This is my first official blog post so please be patient with me as I learn how to share my thoughts and experiences with you all. The topic for this first post is a typical yearly cystic fibrosis appointment. Wyatt is required to go to the cf clinic every three months (when healthy), […]
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Volunteering and Fundraising
When Wyatt was first diagnosed with CF I felt completely helpless and knew that I couldn’t change the fact that he has this disease. It is one of the worst feelings to know that your child is going to have a struggle with his health throughout his whole life. I personally felt guilty and as […]
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Contact With Other People With CF
We learned quite quickly at clinic that people with Cf cannot be around another person with Cf. The protocol is six feet apart minimum. The reason for this is cross contamination of harmful bacteria. For example, if Wyatt has bacteria A and someone else with Cf has bacteria B and they are in close contact […]
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Support of Family and Friends
This post isn’t about the physical aspect of cf but more about the emotional impact on the family. When Wyatt was diagnosed with cf at just a couple weeks old, our lives took a complete turn. It was definitely one of the top hardest moments of my life. We went from having a healthy baby […]
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Chest Therapy
The respiratory system is greatly affected by cystic fibrosis. The thick sticky mucous that is produced in the lungs is breeding grounds for bacteria. Recurring chest infections is very common with cf and leads to progressive damage of the lung tissue which often leads to the need for a double lung transplant. Every day since […]
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Clinic Visits
The CF clinic has become a place we know very well. This is where we received Wyatt’s diagnosis when he was just two and a half weeks old. I can vividly remember every little detail about that visit. Looking at the posters in the hallway while we paced the halls, the exact room we were […]
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